WISCONSIN
PWSA of Wisconsin, Inc.
Prader-Willi Syndrome Association of Wisconsin, Inc., a chapter of the Prader-Willi Syndrome Association (USA)
2701 N. Alexander St., Appleton, WI 54911-2312 (866) 797-2947 wisconsin@pwsaofwi.org
Health Information & Other Resources
H1N1 (Swine Flu) Advisory for Persons
Resources for Families and Caregivers
Info-Share: Helpful handouts for families, caregivers and people with PWS
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Upcoming Events August 28: PWSA-WI's 10th Annual Golf Benefit, Watertown, WI October 15: PWS Behavior Conference, Country Springs Hotel, Waukesha, WI Ongoing: Did You Know? Now You Know! Workshops
News PWS Featured on Extreme Home Makeover - view full episode Good Morning America Feature on PWS Participants Wanted for PWS Research Studies National Sibling Support Project PWSA Grandparent Support |
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PWSA of WI, Inc. provides cost-effective, time-efficient measures to support, educate and advocate for persons with PWS and all who support them across the State of Wisconsin. We connect families and professionals to resources available in their communities and provide consultative and educational services when needed. We advocate for persons with PWS by participating in residential, educational and other planning and team meetings, and we organize parent and professional workshops and training.
Join us at the
PWSA-WI 10th Annual Golf
Benefit!
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New Wisconsin e-group PWSA (USA) and the PWSA-Wisconsin Chapter are pleased to announce a new online support group for Wisconsin families. This group is for family members, friends and professionals involved in the life of someone with Prader-Willi syndrome, to share information about: * Wisconsin Medical and Professional Resources * Individual Educational Plan (IEP) issues * Openings for supportive living arrangements * Eligibility for state services * Creating and announcing focus group meetings around the state
Please take a minute and sign up for this group. Send an email to pwsa-wi-subscribe@yahoogroups.com or visit http://health.groups.yahoo.com/group/pwsa-wi/ |
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Wisconsin Chapter Officers / Board of Directors 2010:
President: Crystal Boser, Glendale, WI Vice President: Jackie Mallow, Dousman, WI Secretary: Melissa Sirovina, Milwaukee, WI Treasurer: Dr. Thomas Hughes, Cassville, WI Board Member: Don Dorn, Verona, WI Board Member: Candice Lipski, Milwaukee, WI Board Member: Al Luening, Grafton, WI Board Member: Katherine Girdaukas, Madison, WI
Program Director: Mary Lynn Larson, Appleton, WI Program Assistant: Melodee Luening, Grafton, WI Web Manager: Jennifer Kryzak, Cedarburg, WI
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Featured Resource Children and Youth With Special Healthcare Needs
The Children and Youth with Special Health Care Needs Program collaborates with national, state and community-based partners to link children to appropriate services, close service gaps, reduce duplication and develop policies to better serve families. There are five regional centers across Wisconsin.
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PWSA of WI, Inc. was established in 1992 by a group of concerned parents of children and adults with Prader-Willi Syndrome. The organization is governed by seven Board of Directors members who are elected every two years, and employs a part-time Program Director and a part-time Program Assistant. In addition, the organization relies greatly on the volunteer efforts of its members.
For questions or comments about this website, or to report a problem, please contact the Web Manager. Resources listed on this website are provided for informational purposes only. PWSA of Wisconsin, Inc. does not endorse any particular therapy or provider. Be sure to talk with a trusted physician about what interventions and approaches are most appropriate for your child or person with PWS in your care.
PWSA-WI Website contents copyright © 2010 Prader-Willi Syndrome Association of Wisconsin, Inc.
