WISCONSIN

Person With Success Stories

For more than two years, our family has sought an adaptive bicycle for Nolan who, like many individuals with PWS, has difficulties with gross motor skills, fatigue, coordination, balance and motivation to exercise.  We recently  (finally!) received a grant from a local agency and were able to get him a terrific Freedom Concepts bike through Creative Mobility at The Bike Rack in St. Charles, IL.  Nolan is so proud of his bike!  It is hard work for him to pedal and steer but each day he does his best, a little bit at a time, and we are gradually working to increase his stamina and improve his motor planning; in time we hope that riding his bike will help increase his self esteem,  enable him to have more opportunities to interact with his peers, and help with weight management which  continues to be a struggle.  Way to go, Nolan! 

Find out more about Creative Mobility at http://www.youtube.com/watch?v=sZZFZEFWTtE

Beth can be very proud of herself for taking care of her beautiful skin.  She has worked hard to decrease her skin picking by using manipulatives,  lotions and positive cues from those around her.  She is enjoying one of her favorite activities, walking along the beach looking for shells.

MacKenzie was born with a full head of hair, and when I mean full head - we could comb it! We never cut it until she was a little over 3 years old, when we donated her hair to the Locks of Love program.  We had an article written up in the local newspaper, and they did a really good job in covering her story.  She sat really well for the haircut, which surprised me because she has such thick hair.  We have let her hair grow out again and when it gets long enough we will donate again to Locks of Love.  Great job, MacKenzie!

Haylee is 10 years old and is currently in the 4^th grade.  She has been working very hard at losing weight.  Over the past 16 weeks, she has lost 12 pounds.  She works out with a trainer 4 times a week and also goes to a gym an additional day.  She has 2 dogs that keep her quite busy too.  Way to go Haylee!! 

IT IS NOT THE SIZE THAT COUNTS

Tony loves to fish.  For years, he and his dad have spent many hours on Kangaroo Lake in Door County catching “big ones” (and some not-so-big ones.)  This summer was no exception. 

There is nothing like the genuine smile on a proud fisherman. Great catch, Tony!

We all have learned to celebrate the small stuff – the little successes that often mean so much in the lives of children and adults with PWS.  Please send us your story (and if possible, a photo) telling about a successful event, big or small, of a person with PWS.   Send your story and/or photo to our Web Manager.   Your submission will imply consent to use any photo and text on this website.