WISCONSIN

• Please help spread awareness of Prader-Willi syndrome and help save lives.

• Please help to create a compassionate environment for those who bravely struggle with this disorder, living in a world where the biggest threat to their lives is food—the very item they need to live.

• Please help create acceptance of our loved ones with PWS, who struggle in a society that shuns those who are overweight.

• Those with PWS want to live a healthy life with acceptance of who they are, just like anyone else.

-  reprinted with permission from the Prader-Willi Syndrome Association

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PWSA of Wisconsin's Mission: 

To Support, Educate and Advocate for persons with Prader-Willi Syndrome (PWS), their families and professionals in meeting the challenges of this disability.

A Brief History:

PWSA of WI, Inc. was established in 1992 by a group of concerned parents of children and adults with Prader-Willi Syndrome (PWS). The organization is governed by seven Board of Directors members who are elected every two years, and employs a part-time Program Director and a part-time Program Assistant.  In addition, the organization relies greatly on the volunteer efforts of its members.

Programs:

PWSA of WI, Inc. provides cost-effective, time-efficient measures to support, educate and advocate for persons with PWS and all who support them across the State of Wisconsin. We connect families and professionals to resources available in their communities and provide consultative and educational services when needed. We advocate for persons with PWS by participating in residential, educational and other planning and team meetings, and we organize parent and professional workshops and training.

Other Services:

• The Wisconsin Connection, a quarterly newsletter, keeps members informed and updated on issues related to persons with disabilities as well as specific issues related to Prader-Willi Syndrome.

• Annual Social Events where the nutritional and behavioral needs of persons with PWS are carefully considered and addressed.

• Camp Scholarships and Financial Assistance to those in need.

• Support Meetings for parents of children with PWS in communities across the State of Wisconsin.

• The PWSA-WI Board of Directors meets three times per year.  Meetings are open to all members who wish to attend.  Please contact the Program Director for more information.

Wisconsin Chapter Officers / Board of Directors 2008:   President:  Mike Larson, Appleton, WI Vice President:  Crystal Boser, Sussex, WI Secretary:  Melissa Sirovina, Milwaukee, WI Treasurer:  Dr. Thomas Hughes, Cassville, WI   Board Members: Al Luening, Grafton, WI Jackie Mallow, Oconomowoc, WI   Program Director:  Mary Lynn Larson, Appleton, WI Program Assistant:  Melodee Luening, Grafton, WI Web Manager:  Jennifer Kryzak, Cedarburg, WI