PWS Informational Handouts

Medical ALERTS!

Health

Dental

Dental Care for Children and Adults with PWS

Dental Health in Children and Adults with PWS


Food Security

Food Safety: Locks and Alarms

Client's Rights and the Medical Necessity for Food


Medical

Anesthesia and Prader-Willi Syndrome

Central Adrenal Insufficiency

Growth Hormone and Prader-Willi syndrome Booklet - 2nd Edition

Hyperphagia Medications and Prader-Willi Syndrome

Hypothermia and Prader-Willi syndrome

Hypothyroidism (Low Thyroid Level)

Puberty Hormones

Skin Picking

Water Intoxication


Aspiration, Swallowing, and Choking:

Swallowing Problems in Infants with PWS (Aspiration)

Hidden Swallowing Problems in Prader-Willi syndrome


GastroIntestinal (GI) Issues and Constipation:

Life Saving GI Evaluation Algorithm Chart

A Comprehensive Overview of GI Issues in Prader-Willi syndrome

Constipation in Children with PWS

Gastroparesis, Gastric Dilatation, with Gastric Necrosis and PWS

Understanding Gastric Motility and Gastroparesis in PWS


Orthopedic Concerns:

Low Bone Density and Prader-Willi syndrome

A Primer on Scoliosis Surgery for Prader-Willi syndrome

Guidelines on Scoliosis Monitoring and Treatment for Children with Prader-Willi syndrome

Osteoporosis Evaluation and Therapy in Prader-Willi syndrome


Psychiatric Concerns:

Mental Health Concerns and Prader-Willi syndrome

Mental Health and Behavior Changes

The Mental Health of People with Prader-Willi syndrome

Psychotropic Medication Tips

PWS Information for Psychiatrists


Respiratory Health/Sleep Issues:

Pneumonia Vaccinations and PWS

Respiratory Complications in Children with PWS

Respiratory Problems in Prader-Willi syndrome

Behavior

Education and Care

Legal Issues

Families and Providers:

Resources listed on this website are provided for informational purposes only. PWSA of Wisconsin, Inc. does not endorse any particular therapy or provider. Be sure to talk with a trusted physician about what interventions and approaches are most appropriate for your child or person with PWS in your care.

PWSA of Wisconsin, Inc. | 38 S Main Street #226 | Oconomowoc, WI 53066 | (920) 733-3077 | progdir@pwsaofwi.org

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